I’m Published! “Weak Bones, Strong Wills.

Well I’m published!  In the first ever book with stories of lives affected by XLH (X-linked Hypophosphatemia). My very brief short story about life with XLH Bone Disease is on pg 29-31 and 67-69. I am hoping that this will help to increase public awareness of the disease and in turn early diagnosis & increased interest in research and treatment for children and adults. Thank you to the XLH NETWORK for all the work & support of patients and families affected by this disease. All proceeds go to The XLH Network. https://xlhnetwork.org Screenshot_20171012-220123Order Now!!!


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